Attention All New Yorkers, A Call To Action: On May 12th, crucial - TopicsExpress



          

Attention All New Yorkers, A Call To Action: On May 12th, crucial legislation that will protect patient treatment choice passed the Assembly. Now the bill-S 5520-B-is before the New York State Senate, and we need your help to get it passed! Click this VoterVoice link--https://votervoice.net/NYSCOALITION/Campaigns/36090/Respond-- and fill out a digital advocacy letter to send to your local and state elected officials. Let your elected officials know why this bill is so important to you. This is a totally automated and easy process and will take you only a minute or so to complete. Lets join our voices together and demand change from our government! You can see this bill-- assembly.state.ny.us/leg/?default_fld=&bn=A07558&term=2013&Text=Y . It’s important to note that this is a New York State bill and only New Yorkers can write letters. Still, this is an issue that impacts patients in every state, so even if you are out of state, we urge you to share this with your family and friends, especially those who live in New York. Earlier this week, to urge support for bill S 5520-B, TBDA Co-Chairman David Roth wrote an impassioned letter. You can read this letter below. Thank you for your support! David Roths Letter I am writing to urge your support for legislation currently in front of the New York State Senate-S 5520-B- that will enhance options for seeking treatment for Lyme disease in New York State. As co-founder of the Tick-Borne Disease Alliance (TBDA), and one afflicted with a chronic version of these diseases, I’ve witnessed first-hand how current regulations and zealous medical boards have hamstrung physicians, limiting how they provide care. Moreover, I’ve experienced the frustration patients face as a result of limited treatment choices. Given that many patients fail to get better after short term treatment and that longer term antibiotic efficacy remains unclear, we at TBDA fully support legislative action that gives physicians the right to treat as they see fit, ultimately empowering patients in the decision making process. Much of the controversy surrounding Lyme and related tick-borne diseases points to the need for the development of more accurate, accessible and affordable diagnostic tests, combined with greater physician awareness of the symptoms of tick borne diseases. Current diagnostic tests often miss infection; physicians often don’t recognize the varying symptoms of these diseases. Experts agree that early tick-borne pathogen detection and treatment are crucial in thwarting chronic illness. TBDA focuses on raising awareness and federal funding for research to learn more about disease progression, the development of novel treatments, and improving diagnostics, a critical first step in warding off their long-term, often debilitating effects. Our advocacy efforts support, among others, legislation that protects patients’ rights, like New York State bill, A7558-A, which unanimously passed the NYS Assembly on May 12th, and S 5520-B, which is currently before the NYS Senate. Until we have better diagnostics and therapeutics, we will continue to vociferously defend patients’ rights to work with physicians, and, with informed consent, receive the care of their choice. As you decide whether to support this bill, I ask that you think about what it must be like to be a patient who suffers with this illness. Try to imagine if it was you or your child. You can support this bill now by clicking on the VoterVoice link below and filling out a digital advocacy letter to send to your local and state elected officials. It is a totally automated process and will take you only a minute or so to complete: https://votervoice.net/NYSCOALITION/Campaigns/36090/Respond- Please put your support behind this legislation to ensure that the growing number of sufferers of Lyme receive the treatment and recognition they deserve. Thank you for your support Sincerely, David Roth
Posted on: Thu, 05 Jun 2014 21:15:49 +0000

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