Have you checked out our new patient registry for #DyskeratosisCongenita TelomereBiologyDisorders? Check it out and add your piece of the puzzle!! This is your opportunity to be heard so that more researchers/physicians can help find better treatments for Dyskeratosis Congenita. Our registry is part of @CENAProject - which is affliated with Genetic Alliance. https://dcoutreach.org/solve-the-puzzle …
Posted on: Fri, 12 Dec 2014 17:42:30 +0000
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