Its Friday and almost time for the weekend! If you have CF or you are the parent to young little one with CF please take the time to help spread awareness to CURE this disease. My friend and role model Andy Lipman is making another fantastic awareness video for CF. His first video I Need A Nebulizer has over 15,0000 views on youtube! He has raised over $2 MILLION for the CFF to end this disease. I know many of you would like to end CF and here is a way to help. You wont want to miss out on this awareness video. All you need to do is send Andy a picture of yourself doing your treatment with your age, state, and a quote! If you dont know Andy I suggest friending him on FB or you can message me and ask for his email to help with this awareness project. Here is some more info from Andy himself. Lets make CF stand for CURE FOUND! If youd like to participate, I need all pictures for our new video where well be doing a parody of Katy Perrys Roar. The name of the song is I will not be ignored. Its to show the world that CF patients are here to make CF stand for Can Fight! Here is our video from last year. https://youtube/watch?v=VyrqrjcPDq4 Please let me know if youd like to take part. You can message me a picture or send me your e-mail address and Ill send you the scoop as to what were looking for in regards to pictures/videos. This is your chance to raise awareness for cystic fibrosis. We have several connections to Katy Perry so Im trying to make this happen. The more people we have participating, the better chance we have of getting her to take part. For those of you Ive tagged, please share this post with your CF networks. Thank you!!! Andy
Posted on: Fri, 05 Dec 2014 12:31:32 +0000
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