Just got done with first day of IVIG! My Stiff person syndrome and myathenia Gravis both flaring bad! Non stop with my SPS episodes since Friday night. So painful my bones, hands,feet, limbs, head twisting and turning in ways you would not think possible! Back to sounding like minnie mouse and eyes wanting to stay shut.Trouble breathing last night put on cpap.I told myself i was gonna stay out another 15 weeks or longer.But just made it 8 NOT happy with that! Neither was my Dr. knowing stress put me here and said i am to fragile for that. She stayed with me a hour had 2 more shots to get this to stop. Dr.s order Christie we been going through disease process together for many years this was the worst. And in your fragile state your body is in. QUIT doing for others what matters most is you taking care of you! Do for you she knows i am ocd about house etc and i just want to do for others! Sorry honey its not being rude but if your put in a stressful situation remove yourself because its apparent others are not realizing just how sick you! I love my Dr she said with me for over a hour! More than just a Dr but someone truly care! Thank you I am so blessed!
Posted on: Wed, 19 Jun 2013 05:38:28 +0000
Trending Topics
Recently Viewed Topics
© 2015