Katie Update: Her surgery was due at 8:00am but she did not go in until after 2:00pm so its taken all day. Her central line was taken out and she had a cannula inserted in her foot, to keep her salt fluids going while she was in surgery. They have inserted a picc line into her arm which will remain in until she has finished her very strong antibiotics. Unfortunately the picc line that they used may be too small to take blood from as well as used for antibiotics. If there is a risk to the line they will have to put in a new cannula. These dont tend to last long in Katie so fingers crossed. The pic line did bleed a little and the new patch will be changed in 72hrs so she will get all cleaned up soon. She is very tired and sick of people touching her and doing bloods. A little cranky so she needs lots of love and cuddles. The big decision is after the antibiotics. Katie will have a Port placed instead of a new central line. It will mean she will have emergency access but still be able to go swimming. It also means, bloods twice or more a week will be done in her arms and she will need to work with people to help her deal with this pain. Its a lot to ask a 4 year old to do. Especially after pain free bloods for 3 years. The port will sit under the skin, so imagine a permanent cannula that is accessed via a needle through her skin, and into a chamber connected to her artery. Same as a central line when accessed but you take away the outside tube when you leave hospital. All very big decisions this week. Now to get this little girl healthy for her surgery next week. The 3rd photo if you see the white space ship device. That will be under her skin. So it will protrude a bit like a lump under her chest. Thanks everyone, goodnight
Posted on: Thu, 03 Jul 2014 11:16:33 +0000
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