My heart is so broken. Yesterday on our way to Medford to see - TopicsExpress



          

My heart is so broken. Yesterday on our way to Medford to see the Metabolic Specialist, Dr. Harding from OHSU, we got the call back on Olivers 24 hour EEG results... they couldnt give any details but the said it did show seizure activity and they wanted to start him on medication immediately. .. She must have heard the uneasiness in my voice, because she suggested us coming in to discuss the results rather than her first suggestion of just prescribing the medication over the phone... We have an appointment Monday at 8:30 am in Medford to discuss the results. Until they can narrow down to what is causing it they are calling it Infantile Epileptic Insephilopathy. Dr. Harding is wanting to pursue further genetic testing before following through with the muscle biopsy, which was a relief to hear. Now we wait for the process of referrals and insurance to follow through, then we can start the further testing.
Posted on: Fri, 07 Nov 2014 23:33:54 +0000

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