Ok, So I dont know how far to go back, but I want to say I am obsessed with 2 boys in my life. Let me explain, one is the offspring of the other so just giving me one more ( even though there are thousands) of reasons why I love the other! Every time this nasty, horrible, no good, takin every thing I got disease takes me down I make sure I have a photo printed off of the mop of curls boy for my focal point to hold on to, to focus on getting to a point of being able to get out of bed even if its just for a few hours, I am a mom, I know I am a disabled mom and its VERY different but Im still a mom! Tomorrow my baby thats not a baby (Lyme disease has taken over half of his childhood from me that I can not get back, this is what probably angers me most of this disease, that and the unwillingness of others to to take time to educate themselves, but anger is unhealthy and I choose to release, I would rather surround myself with love:) the other male is my husband, the man I vowed to love for sickness or health, the man that feeds me, medicates me, clothes me and holds me down through seizures. The man that worked all day hanging sheet rock and using a screw driver, holding a paintbrush all out of the ordinary when his personal comfort zone is the kitchen ( remember we had a restaurant, hes been a cook for over 20 years, a gamer NEVER in hand;) and stoping every 20 min to unlock my Ankles, feet and knees, just so a room can get done and little monster can come home. A huge gift of kindness a visit from our construction angel should we call him, stopped in and borrowed us movies and visited. ( its nice to see faces, some font understand when your home bound you have NO interaction unless someone comes to you) our other friends made a surprise stop as well and jumped right in to work, it was great to have help AND company! the kitchen got cleaned and baby proofed. And the guys did guy stuff;) Cade had an awesome first week at school, really awesome! Everyday she came home with positive stories and everyone was very welcoming to her, teachers, staff and classmates! Its the happiest shes been in over a year!! What a load of stress off mom! GO W-H-A !!! Thanks for making it easy on her Earlier this week I had my neurologist appointment in St Cloud. Its a long drive now and I dont do well on cars(I am un able to look out windows, or have radio on, I can not handle traffic, ect) it was a long appt because I had to have my full body EMG done. This is where they shock all your nerves and put needles in all you muscles and take all the readings. Its never good news at doctors, thats why we dont like going but neurologist some of the scary news cause lots of her news is the non reversible, and we cant give you a magic pill or 20 more supplements, shes just telling us the facts, it is what it is: from hips down in legs: all my nerves are GONE, fried, not working! From shoulder down in arms: 2/3 of all nerves done , GONE, not working! As for the muscles both legs and arms they are completely ready to give up for good, theyve been under too much constant strain. In the last 2 months my hands, fingers, armed , legs, calves, feet, ankles , toes, are almost constantly clenched. The muscles never get a break. The tremors have gotten so and now Im having nearly daily seizures. This is scary for the whole family especially when the medicines arent working. Lots more labs were done ( when a Lyme patient says lots of labs she means roughly 30 viles of blood to be drawn) check my ANA levels and all my vitamins, minerals look for any new autoimmune. We also had a two and a half hour appointment with my new primary doctor this week. Very cool man, he was skeptical and a bit leery of me at first as most are, even though I was only actually giving him even half the history till he would take me on;) he works a few days in the ER s month so he told me hed get me names of more Lyme literate ER Physicians as well so we never run in to a mishap similar to Decembers! He was going to research for ME and get me a Lyme literate cardiologist and get referral in ASAP since its been a few months and the POTS is so bad. He was open to talking with all of my specialists and seeing me on weekly basis, he spoke/listened with compassion and probably learned a lot from chad. He understood all I needed was a primary and my goal: NO ERs just weekly visits, for preventive and monitor! He will defiantly be getting my children as patients and referrals from me, oh the nurse was great, and front desk super professional! Omg I just got soooo excited> I saw my own picture, I get to see baby boy tomorrow!!!!! Daughter is talking in her sleep ( her mattress is on our floor ) the dog, cat and husband snoring in rhythm next to me) Life is good! I CAN move my legs under the blankets~~~ after going months of not being able to do that I have to remind my self to look at the big picture!!....,...it no longer maters that my riots are longer than my hair color...ombr
Posted on: Sun, 09 Mar 2014 04:54:35 +0000
Trending Topics
Recently Viewed Topics
© 2015