On this day one year ago, at about this same time, we were rushing to the ER with Truett. Its when this journey began for us. When we arrived, Truett was limp in my arms with spaced out gasps for breaths. It was awful and something I hope none of you will ever experience. Its hard not to think about what weve been through over the last 365 days. No parent should watch their child almost die in their arms, or on a hospital bed while doctors work on him for 45 minutes, or rush to the hospital in your pajamas in the middle of a snow storm because the hospital called with news that hes coded, they are doing CPR and they dont think he will make it. Or what about being told over and over again that your child has a different genetic disease and will die soon, and then that they were wrong and they dont know what happened or why he is this way or what to expect for his future. Or the feeling that you get when you realize your child may never breathe, eat, talk, move or walk. Its been an awful year, but despite it all, there is so much to be thankful for. We are thankful for Truett and the year we have had with him to get to know him as he was almost taken from us so many times. We are thankful for all of the doctors, nurses, surgeons, and respiratory therapists who kept him alive and now keep him healthy. We are thankful for our home nurses and our home respiratory therapists as they have each saved our childs life on many shifts and continue to put our children ahead of their lives. We are thankful for the many doctors all over the world who reached out to help us, especially Dr. Jodie, Dr. W, And Dr. M. who helped us learn of IVIG. We are thankful for our physical therapists, occupational therapists and speech therapists who continue to help Truett move and experience life. We are thankful for all of you who have prayed, brought meals, donated your time and money to help our son. We are thankful to Pastor Russ and his team who baptized Truett and showered us with love. We are thankful for our moms, who have given so much of their lives to help Truett and our family to succeed. We are thankful for the families of undiagnosed children that have become our friends and guides. They have lost their precious children and yet they still reach out to help us enjoy this time with Truett. We are thankful for Savannah as she has been a bright spot in our day and forced us to carry on with life. We are thankful for her therapist , Dr. Colleen, and mine, Dr.H, who help us feel normal during abnormal and stressful times. I am personally thankful for my loving husband who has somehow managed to work and help me with both children during this crisis. He is the balance I need so that our life does not completely revolve around Truetts healthcare crisis. Just this morning I was crying and he told me to celebrate this day and this year. Thurston is right. Truett is still here, and hes improving. Today is a day to celebrate. To praise God for all of these blessings and the peace and guidance He had given us during this storm. So, we did just that. We made cupcakes today. It was so much fun. We laughed, made a mess and enjoyed life.
Posted on: Fri, 19 Sep 2014 23:09:11 +0000
Recently Viewed Topics
© 2015