Sorry for not updating lately everyone, lots has been happening - TopicsExpress



          

Sorry for not updating lately everyone, lots has been happening and there have been both good and bad days. Good days have included the luxuries of going out for a meal, spending time with friends, and being able to negotiate my way through a tense meeting without letting myself be manipulated into losing my temper. Bad days have included extra seizures, overdoing it and ending up with extra pain, and finding out the amazingly high crp levels I have even while taking three times a day anti-inflammatories and thinking I was having a good day - dread to find out how high it is on a bad day, but apparently thats the next step for blood testing. I have however been reassured by a diagnosis of Fibromyalgia - which many had said it was likely that due to my symptoms over the past few years, but no one until now had confirmed. Im part-exchanging my mobility scooter for one that will be more permanent for me, as forcing myself to walk with crutches, and then trying to force myself to walk without them has indeed caused more problems with pain levels, and will be succumbing to using it whenever I need/want to get out and about in my home town. Ive managed to get one that later on (if and when I become seizure free again and get permission) I can use on the road (as long as I buy road tax and insurance for it of course) as it has indicators, horn, headlight etc. In the meantime I shall keep to using it on the path and will use a walking stick when I go in shops etc. So now Im left with a bit of a problem though, as although I was in pain, I was also exercising by walking and just starting to lose some weight. This isnt going to be viable, so Im now looking at other ways of losing weight and Ive got to say that other than diet there is next to nothing for people who lead a semi-sedentary lifestyle through pain. Now I must admit, my diet has gradually descended into a mixture of healthy home prepped food, casual supermarket easy baking options, and takeaways (which although I love - I really must cut down on). I didnt used to eat this way. I used to eat home prepped food all the time, but now find it difficult as Im often too tired or fear something going wrong. I mean what happens if Im chopping up veg and I have a seizure which causes me to slice my hand open? What if Im trying to get a heavy pan off the cooker to empty out the water and the pain Im in is so severe that I drop it all and end up scalding myself? The days that I feel up to cooking are gradually becoming farther and farther between, so what do I do now? Mostly my partner cooks (hence the supermarket whatever is easy type food as bless him he does so much around the house already), and when Ive been too stressed out and I feel G has been doing far too much already I tend to get us a takeaway to cut down on his workload while avoiding locking my shoulders or cricking my neck, or dropping things, etc. So, Im open to suggestions guys, please let me know how you cope with losing weight while in pain and fatigued. My current idea is to go on a liquid plan like Cambridge or Lighter Life, but that doesnt help G have a break from cooking for him and the kids, and Id really like to still be able to eat with my family. Any ideas? Thanks xx
Posted on: Fri, 05 Sep 2014 15:52:40 +0000

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