Teleconference Support Group for Parents of Kids with ITP Meeting Announcement PDSA SUPPORT GROUPS BUILDING STRENGTH THROUGH SUPPORT. ADVANCING ADVOCACY THROUGH EDUCATION. ...and making the World of ITP a more manageable place to be. Dear Fatime, Please join us for a meeting of the Parents of Children with ITP Teleconference Support Group. This event is sponsored by the Platelet Disorder Support Association (PDSA) and is open to all patients, their families, friends, doctors and caregivers. If you are a doctor or caregiver, please pass this information along to your patients with platelet disorders! The meeting is a toll-free teleconference call. We hope you can join us! Please Join Us! DATE: Wednesday, February 4, 2015 TIME: 7:00PM EDT (6PM Central, 5PM Mountain, 4PM Pacific) LOCATION: This meeting is via toll-free teleconference. Email the facilitator below to receive call-in information GUEST SPEAKER: Dr. Ellis Neufeld, MD, PhD Associate Chief, Division of Hematology/Oncology; Medical Director, Boston Hemophilia Center Egan Family Foundation Professor of Transitional Medicine in Pediatrics, Harvard Medical School RSVP: Facilitator: JAY CHARNESS jay@ape-strangerawareness MEETING HIGHLIGHTS: KIDS SEGMENT: For the first 30 minutes of the call, the kids have the opportunity to talk to other kids with ITP. Its empowering for kids to discuss the daily issues and challenges associated with living with ITP with others dealing with the same trials. Jay Charness, (whose daughter Ayla who has lived with ITP for 8 1/2 years) also facilitates this segment of the call. PARENTS SEGMENT: Parents discuss the daily challenges of managing life with a child with ITP. Topics include: both the challenges the kids face and the challenges parents face in managing ITP, treatments, school, vacations, hematologists, nurses, and siblings are some examples but the list is infinite. Its a meeting for families, driven by families. The agenda is set by its members and provides and open, casual, informative, complimentary meeting place. The Parents of Children with ITP Teleconference Support Group is associated with PDSA, 8751 Brecksville Rd, Suite 150, Cleveland OH, 44141 Toll free 877-528-3538, FAX 1-844-270-1277 Email: [email protected] The Platelet Disorder Support Association is dedicated to enhancing the lives of people with immune thrombocytopenia (ITP) and other platelet disorders through education, advocacy, research and support. Visit pdsa.org for more information.
Posted on: Thu, 15 Jan 2015 05:07:03 +0000
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