This is what severe EB looks like. I am sorry if this is hard for - TopicsExpress

This is what severe EB looks like. I am sorry if this is hard for you to see. I know I post about EB every single day. You may be getting sick of it. BUT....you noticed this, you may have responded, commented, shared, looked away and cringed, deleted it off your wall, but.....you saw it, and now you know. The more people who see this.........the more people who will KNOW what lies beneath the bandages. Awareness will create more funding for research and ultimately A CURE. Imagine if this were your child. This is every single day. This does not go away. There is no medication, diet, water, soap, cream, shake, vitamin, clothing, bandage, or healer that can make this go away. Only a Cure. For EB Awareness week I am sharing. If you are sick of seeing it........imagine how we feel. puckfund.org

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