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What is Dravet Syndrome? Dravet syndrome, also known as Severe
What is Dravet Syndrome? Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable e...
Caleb is doing well this morning so far. He has now had his second
Caleb is doing well this morning so far. He has now had his second dose of Vimpat. He did wake in the middle of the night again seeing scary things bu...
Caleb had another SEIZURE FREE night...I love seizure freedom,
Caleb had another SEIZURE FREE night...I love seizure freedom, even if its only a day or a few days. While I pray for complete seizure freedom forev...
After a wonderful birthday party Caleb got that weird feeling
After a wonderful birthday party Caleb got that weird feeling again and asked to go to bed early, again something completely out of the norm for him ...
Caleb and I worked on his letter and phonics this morning. He had
Caleb and I worked on his letter and phonics this morning. He had a lot of trouble trying to remember what each letter was and its sound but he was e...

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