Blakes Battle with JMML Posts - TopicsExpress

Day +28 Well we decided that we are not going to go home
Day +28 Well we decided that we are not going to go home tomorrow. The Dr gave us the option but pointed out that if anything was to happen we would ...

Day +19 I feel like my light at the end of the tunnel is closing
Day +19 I feel like my light at the end of the tunnel is closing up. Im getting discouraged that we will even go home next week. We have already bee...

Day +11 Blake has been doing well. His mucositis appears to be
Day +11 Blake has been doing well. His mucositis appears to be going away however his diaper rash is still very present & painful. His bilirubin was...

Blakes numbers didnt recover as well as we had hoped. His JMML is
Blakes numbers didnt recover as well as we had hoped. His JMML is still very present although we knew that the chemo wouldnt get rid of it completely...

Blake is still doing good. He did get a fever this afternoon
Blake is still doing good. He did get a fever this afternoon (101) but it literally lasted less than an hour before he got any meds. They drew cultu...

Sunday 10/5/14: It has been a long 2 weeks since Blakes
Sunday 10/5/14: It has been a long 2 weeks since Blakes diagnosis. We have such a long road ahead of us. The week was going by okay but I let myself...