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Posts by Charlies Journey



My poor baby. Surgery went as well as expected they were worried
My poor baby. Surgery went as well as expected they were worried about Charlie having two shunts running down either side of his body but they were co...
We were told we had a hard decision to make involving Charlies
We were told we had a hard decision to make involving Charlies chosen chemo when he was registered blind, there was a new trial drug, only been on the...
Im overwhelmed by all the support and advice weve received since
Im overwhelmed by all the support and advice weve received since setting this page up, Ive just this minute received an email to say Addensbrooke will...
Along side Lipodystrophy Charlie has now acquired a Nystagmus,
Along side Lipodystrophy Charlie has now acquired a Nystagmus, something that again will effect him throughout his life. We are raising funds to get C...

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