Claires Heart Journey Posts - TopicsExpress

She did ok last night. In addition to the constant sedation
She did ok last night. In addition to the constant sedation infusion, they are giving her scheduled ativan and placed a patch on her for another cont...

Today was a tough day to say the least. She was extremely
Today was a tough day to say the least. She was extremely irritated and they had to increase her oxygen support and her sedation meds as well as stop...

Update: Claire had a great day today!! Unfortunately, she tested
Update: Claire had a great day today!! Unfortunately, she tested positive for a urinary tract infection and c diff. They started her on antibiotics ...

Update: They are not doing a heart cath for Claire. They feel
Update: They are not doing a heart cath for Claire. They feel the risks, at this point, outweigh the benefits. When we arrived to the hospital this...

A year ago today, my family received the heartbreaking news that
A year ago today, my family received the heartbreaking news that our baby girl, Claire, would be born with a serious heart defect leaving her with hal...

Update: Claire has had some REALLY good days. We came down from
Update: Claire has had some REALLY good days. We came down from CVICU on Thursday. Since then, her oxygen saturations have been consistently above...

Update time...Claire is much happier out of the ICU. Mostly
Update time...Claire is much happier out of the ICU. Mostly because mommy gets to play and comfort her all day long. I hate to say this, but the pict...

CATH UPDATE: Right before we transfered down to our room, she
CATH UPDATE: Right before we transfered down to our room, she got a little agitated. While they were getting her settled on 15, they changed out her...

Claire is still doing OK. Her stats are all back to baseline and
Claire is still doing OK. Her stats are all back to baseline and she is stable/no fever. She is still on oxygen. Last night her labs came back low f...