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TODAY is Moebius Syndrome Awareness Day (MSAD)! MSAD is an event
TODAY is Moebius Syndrome Awareness Day (MSAD)! MSAD is an event which is celebrated globally each year on January 24th - the birth date of Professor ...
World Rare Disease Day is an annual observance held on the last
World Rare Disease Day is an annual observance held on the last day of February (28th or 29th (a RARE day)) to raise awareness for rare diseases and i...
Are you a #RAREDiseaseRockstar? Join Global Genes Project and
Are you a #RAREDiseaseRockstar? Join Global Genes Project and Harmony 4 Hope in creating The 2015 Harmony 4 Hope Playlist that will be on iPods donat...
Have you left your song choices with Harmony 4 Hope? Global
Have you left your song choices with Harmony 4 Hope? Global Genes joined H4H as #RareDiseaseRockstars and you can too! Our team has put their reques...
This experience taught me that simplicity is the real gift we
This experience taught me that simplicity is the real gift we received during that special holiday time when our lives changed forever. All of those g...

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