Jetts Journey Posts - TopicsExpress

So no 24 hours EEG needed. Thank goodness. That thing sucks to
So no 24 hours EEG needed. Thank goodness. That thing sucks to deal with when you have a toddler! 10 episodes were caught on the EEG. Also on vide...

Its been great meeting with a lot of our team today, starting to
Its been great meeting with a lot of our team today, starting to put a plan in place. Did a few X-rays, waiting to see certain specialists ( neurolog...

I try to be as positive as I can on this page. But let me tell
I try to be as positive as I can on this page. But let me tell you, things arent always gumdrops and rainbows. This has been a VERY difficult season...

The household is dropping like flies with this gut bug. Every
The household is dropping like flies with this gut bug. Every one of us has some symptoms. Which means, we cant see Jett. So I dont have a lot of in...

☺️☺️☺️☺️☺️ I LOVE our Down syndrome doc.
☺️☺️☺️☺️☺️ I LOVE our Down syndrome doc. Shes our clinic doc and head of the pediatric unit, and is the doc on this week. When...

You know, with all of Jetts medical needs, I kind of kept his
You know, with all of Jetts medical needs, I kind of kept his epilepsy on the back burner, even let it slide if you will. I think in a way it was den...

Jett update : Today was a scheduled gtube change. It was my
Jett update : Today was a scheduled gtube change. It was my second one , ever! I arrived at the hospital with extra tube in hand. It was around 1pm ...

Just called for an update.... Poor Jett Jett has an IV , they
Just called for an update.... Poor Jett Jett has an IV , they dont want to feed him until they know what is happening. They are going to do an uppe...