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Posts by Leos Pride



Hope everyone is having a great start to 2015! Leo has been doing
Hope everyone is having a great start to 2015! Leo has been doing great! He had so much fun with family over the holidays, and has been enjoying this ...
Leo has been feeling so much better! He had one of the best days
Leo has been feeling so much better! He had one of the best days he has had in awhile today. He has also had several good nights in a row. Thank you s...
Do you have any wood nearby you can knock on? Dont want to jinx
Do you have any wood nearby you can knock on? Dont want to jinx it but......Night One in Leos own room was a huge success! On a good night Adam and ...
Leo is in his own room! I did not think this day would come.
Leo is in his own room! I did not think this day would come. The day where we felt Leo could safely sleep across the hall from us in his own room. Hi...
Leo got his wheels!! We are so excited to tell of you that
Leo got his wheels!! We are so excited to tell of you that because Go Leo Go was such a huge success, we were able to get an accessible van ! I think...
Leo went back to the Assistive Technology Ctr again to try the eye
Leo went back to the Assistive Technology Ctr again to try the eye gaze system. He did so great! He did a great job on his calibration testing, which ...
The BBQ was a huge success!! Thank you so much to everyone that
The BBQ was a huge success!! Thank you so much to everyone that came out to support Leo! $2,520 was raised! You all are so amazing, and we continue to...
Sorry for the lack of updates! Leo has had an overall good week.
Sorry for the lack of updates! Leo has had an overall good week. He gave us a little worry with his heart rate doing some new very abnormal stuff, but...
SMA Awareness!! Is there a cure for SMA? No. Currently there
SMA Awareness!! Is there a cure for SMA? No. Currently there is no cure for SMA, BUT there are treatment/care options. 1. Non-invasive Care- this ...
SMA Awareness! The muscles that give us the ability to cough
SMA Awareness! The muscles that give us the ability to cough are also weakened with SMA. Many individuals benefit from a Cough Assist machine. This m...

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