Myotubular Myopathy - Charlies Story Posts - TopicsExpress

My little dude has had a good afternoon 😊 He thought it was
My little dude has had a good afternoon 😊 He thought it was hilarious to have to get his clothes changed in the boot of the car after he was sick a...

Our little thinker! I love it when he poses, its his way of
Our little thinker! I love it when he poses, its his way of holding his head up a little when hes feeling tired, clever little thing he is! My boy rea...

Weve got a poorly boy this morning 😞 Charlie was sleeping fine
Weve got a poorly boy this morning 😞 Charlie was sleeping fine last night then we had a small desat for no real reason which isnt like him. We thou...