Princess Alis Journey with NBIA Posts - TopicsExpress

Today was Alis last physical therapy until they can get more
Today was Alis last physical therapy until they can get more approved from insurance. She is doing much better, although her knees are bad from contra...

Sorry I didnt update yesterday, I spent half the day running
Sorry I didnt update yesterday, I spent half the day running around between Alis therapy and other things. This is going to be a long post as I update...

We made it to therapy this morning. Ali broke my heart when I got
We made it to therapy this morning. Ali broke my heart when I got there to pick her up though because when she got to the front to leave she had tears...

Ok I am going to clarify up the insurance issue. I truly hate
Ok I am going to clarify up the insurance issue. I truly hate talking about money and this is why I didnt do this is May, the first time Ali lost her ...

More packages and cards today, David and Michael even received
More packages and cards today, David and Michael even received cards of their own today. Two days in a row we have received over 40 cards from outsi...

Todays maps and cards. Today we added Finland, Russia and Austria
Todays maps and cards. Today we added Finland, Russia and Austria to the map. We went to a birthday party today and had a blast. Ali gave mommy a wo...

Good day yesterday. We made it to the movies and watched Guardians
Good day yesterday. We made it to the movies and watched Guardians of the Galaxy 3D. Ali didnt keep her glasses on the whole time for 3D but I got a g...

Hello everyone! Well today has definitely been a busy day and our
Hello everyone! Well today has definitely been a busy day and our Princess is a TV star! I would like to post a little bit about the disease that Ali ...

The new neurologist is amazing! God led us in the right direction
The new neurologist is amazing! God led us in the right direction on choosing a neurologist and I am very happy about it. First, he knew about NBIA wh...