Sawyers Life with Vlcadd Posts - TopicsExpress

Well, turns out all of Sawyers blood work looks good! They turned
Well, turns out all of Sawyers blood work looks good! They turned off her fluids and she is maintaining her sugars and her oxygen levels so they are s...

We got into Pittsburgh this afternoon. Our flights were smooth for
We got into Pittsburgh this afternoon. Our flights were smooth for the most part! Sawyer only slept for about 30 minutes during the first flight so ou...

Sawyer has had a pretty good couple of days until today. She has
Sawyer has had a pretty good couple of days until today. She has been tolerating her oil and her feeds much better! On our home scale, it says she has...

Sawyer had a rough day. Her port clotted off again so they are
Sawyer had a rough day. Her port clotted off again so they are having to do another round of TPA. They tried to take the needle out to to replace it t...

Wow! 1,300 Likes!! Thank you so much for joining us on our
Wow! 1,300 Likes!! Thank you so much for joining us on our journey! VLCAD is not curable so we will be fighting for the rest of Sawyers life! We are s...

We are in the ER. Her blood sugar was 128 when we left our house
We are in the ER. Her blood sugar was 128 when we left our house and it was 73 when we got here. Goes to show how quickly her body burns through her b...

Sawyer did great during her test today! It took about an hour and
Sawyer did great during her test today! It took about an hour and a half but she sat still most the time, thanks to my iPhone! We dont get official re...

Sorry it has been awhile guys! There hasnt been much to update!
Sorry it has been awhile guys! There hasnt been much to update! Sawyers vomiting is still the same, her medication is still the same and she is still ...

Well, today was good and bad. Good news first, her port flushed
Well, today was good and bad. Good news first, her port flushed and drew back blood without having to use another round of TPA!!! Yay!! They were able...

Oh my gosh! I cant believe we have hit 1,100 followers!! We are so
Oh my gosh! I cant believe we have hit 1,100 followers!! We are so blessed by every single one of you! This is going to be a longer post because I wil...