Susan Weismann Lee Posts - TopicsExpress

Scary situation just now as I was on my way to pick up Austin from
Scary situation just now as I was on my way to pick up Austin from boys choir. Pulling out of the parking lot and notice a commotion just to my right...

11:18 and everyone is finally in bed! Austin had boys choir
11:18 and everyone is finally in bed! Austin had boys choir tonight and Connor had to play pep band for a football game until 8:45. Got home and Wal...

I am completely SPEECHLESS, and those of you who know me know that
I am completely SPEECHLESS, and those of you who know me know that is rare! When I posted last week asking for people to send Alyssa some mail to cel...

Alyssa just had her final injection of the study. 16 months... 7
Alyssa just had her final injection of the study. 16 months... 7 Boston trips, 38 plane rides, 51 nights in a hotel, 44 medical appointments, and 560...

This afternoon we had an experience that has occurred a handful of
This afternoon we had an experience that has occurred a handful of times since Alyssa was diagnosed with Rett, but tonight it took on a different mean...

Calling all friends, family, acquaintances, Rett sisters, and
Calling all friends, family, acquaintances, Rett sisters, and anyone else... As most of you know, this is Alyssas final Boston trip for the IGF-1 clin...

So proud of all the Boys in the Birmingham Boys Choir. They are
So proud of all the Boys in the Birmingham Boys Choir. They are in the middle of summer camp (7-8 hours/ day of singing). They performed tonight at ...

It was hard seeing all the church kids in church today singing VBS
It was hard seeing all the church kids in church today singing VBS songs. Alyssa should have been there enjoying the moment and singing with all the ...