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Posts by Team Charity Grace



Charity is doing pretty well. Her fever is down (however she does
Charity is doing pretty well. Her fever is down (however she does feel warm, so well see if it goes back up as the day goes on), her congestion contin...
A few have asked me why it is important to get a genetic diagnoses
A few have asked me why it is important to get a genetic diagnoses for Charitys metabolic disease. It is important so we know with 100% certainty what...
I am so happy to report Charity has been fever free for 24 hours!
I am so happy to report Charity has been fever free for 24 hours! I am thrilled Charity didnt have anything concerning happen that required medical ca...
Doctor results. Endocrinologist called apologizing for not
Doctor results. Endocrinologist called apologizing for not replying to my emails...he had been out of town and there was a communication error so I ...
Our family had the pleasure of going to the TGen headquarters
Our family had the pleasure of going to the TGen headquarters tonight to hear all about how the marathon will benefit TGen. We also got to see how the...
We just heard Charitys lab results from the GI nurse. All of
We just heard Charitys lab results from the GI nurse. All of Charitys liver function tests were in a NORMAL range...first time in a year! Charitys pan...

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