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Posts by Turtle Power for James Edwards



Update: James had a good weekend. I skipped his chamber dives this
Update: James had a good weekend. I skipped his chamber dives this weekend and started back up today. Tonight he tolerated one straight hour in his st...
As everyone looks back at 2014, it sure is a difficult one for me.
As everyone looks back at 2014, it sure is a difficult one for me. The worst is behind us and James is on the road to recovery. Although I always appr...
Update: Another week of progress for our little ninja. This week
Update: Another week of progress for our little ninja. This week we really increased his swallowing/oral motor focus. Tonight, he was vocalizing so mu...
Update: a more detailed update - James has been doing well. Last
Update: a more detailed update - James has been doing well. Last night was an off day from the chamber and we had some trouble getting him to bed. He ...
Update: James had an awesome day today loaded with family! As soon
Update: James had an awesome day today loaded with family! As soon as I posted last nights update, I started to feel really sick. Skyler said he would...
Update: My goodness, what a week! One week ago, Skyler and I
Update: My goodness, what a week! One week ago, Skyler and I called 911 to take James to the hospital because he was acting strange. We never anticipa...
Update: We are almost 9 hours into Jamess continuos GoLytly feed.
Update: We are almost 9 hours into Jamess continuos GoLytly feed. He had a pretty massive explosion at around 6:00 after he took a great nap! Since th...
Update: The roller coaster continues over here. James has been up
Update: The roller coaster continues over here. James has been up and down for the last two days. He has good hours and bad hours. I wasnt able to get...
Update: What a difference a day (along with a lot of soiled
Update: What a difference a day (along with a lot of soiled diapers) makes!!! Im so happy to be posting about the good day our ninja had today. 😄�...
Update: whelp, we are back at the emergency room. Yesterday James
Update: whelp, we are back at the emergency room. Yesterday James had an off day. Very stiff and out of it. Last night we had company and James wasnt ...

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