Fighting 1,518 days and still going strong !!! She wanted to be - TopicsExpress



          

Fighting 1,518 days and still going strong !!! She wanted to be on video so I hit record and then she said no , silly girl She has been feeling up and down the pass few days :( So there has been a lot of polar express watching She has been eating ok but her drinking is great at least. She has been waking up either in the middle of the night or really early in the am screaming and crying for mommy or daddy. It just brings tears to my eyes. Im not sure whats going on but she says she has bad dreams so Im it stops soon. She gets so scared she trembles, it just breaks my heart. We get her up and cuddle and say prayers again and within 45 minutes shes sleeping . She is such a brave and strong little girl!! Next week is clinic again with port access , labs, urine test, Iv pentamidine and to meet with her team of drs . They will revaluate her again and if her counts are good they will start her on cycle 18 of her treatment (18th month) She will have her MRIs , spinal tap, echo and EKG sometime next month. Praying that her tumor is shrunk or gone. I would like to say a huge a HUGE THANK YOU to everyone that is praying and healing out our family at this time. We are struggling and you all are here to help. If its prayers , positive comments or messages, donations etc. You all are amazing!!! Thanks To you all for all your love, prayers and support. It means so much to us knowing we have you all on our side fighting right along side of us. You all are such a blessing to us and you all have helped us stay strong and get through each and everyday! God bless you all Many hugs and love to each and everyone of you❤️ Love The Pagel Family
Posted on: Tue, 13 Jan 2015 04:40:53 +0000

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