Karters fight - our battle with dystonia Posts - TopicsExpress

Bit of a stressful day for us today karter woke very flat and
Bit of a stressful day for us today karter woke very flat and lethargic picked up for a bit then crashed again his peg was looking a little icky so de...

Look whos up n out of bed having a snuggle with gummaa ♡ this
Look whos up n out of bed having a snuggle with gummaa ♡ this kid AMAZES ME! his resilience is truely incredible ♡ Slowly weaning him off morphine...

SUPER EXCITING NEWS!! after the original pram that was being
SUPER EXCITING NEWS!! after the original pram that was being donated to Karter turned out to be far too small we were completely stuck for what to do...

Karters trial yesterday at the independent living center went
Karters trial yesterday at the independent living center went really well we have an AMAZING o.t she is so intune with karters needs. Sadly the wheels...

Howdy all our lovely new likers ♡ An update from the last
Howdy all our lovely new likers ♡ An update from the last week. It was one of the most hectic weeks we have all had in a very long time we had 15 a...

Today was GREAT day we had a lovely visit by one of our friends
Today was GREAT day we had a lovely visit by one of our friends sarah. Karters birthday present from grandma finally arrived from the u.s.a its a sup...

BUMBO TO THE RESCUE!! having a really floppy wobbly day today has
BUMBO TO THE RESCUE!! having a really floppy wobbly day today has sleept 2x 2 hour blocks before 2pm and just lay in my arms for most of the morning ...

Tonight karter saw his foot specialist. Was a great session he
Tonight karter saw his foot specialist. Was a great session he took loads of notes and we discussed HEAPS. It has been recomended that karter use ther...