Levis leukodystrophy battle Posts - TopicsExpress

So wanna hear the funniest task i have set myself for this
So wanna hear the funniest task i have set myself for this year??!! I am going to try and get a famous Australian singer or actor/actress to record a...

Someone is looking much brighter after his bath and meds! Levi is
Someone is looking much brighter after his bath and meds! Levi is requiring panadol every 6hrs at the moment to ease whatever pain that is going on in...

After a day of fighting with doctors and nurses, many talks with
After a day of fighting with doctors and nurses, many talks with neurologist.. LEVI IS HOME! Way to many people were involved in the decision to disch...

On the 7th of Janurary 2013 we found out we were expecting, after
On the 7th of Janurary 2013 we found out we were expecting, after being told natural conception is unlikely for myself due to my own health problems.....

Hey everyone, Ive been trying to write Levis update for a week
Hey everyone, Ive been trying to write Levis update for a week now! Unfortunately our last week has been horrible, Levis had a terrible cold and needs...

Levi had an awesome day today, in the morning we played inside
Levi had an awesome day today, in the morning we played inside because it was a bit warm, we then went and had lunch at the hospital and met another K...

Yesterday, 9th of July we found out we ONLY JUST missed our window
Yesterday, 9th of July we found out we ONLY JUST missed our window of opportunity (he would be eligible if they could transplant TODAY, unfortunately ...

Today we went exploring, Levis Nanna got us lost but we found
Today we went exploring, Levis Nanna got us lost but we found Starbucks in doing that! Levis been very whingey lately but we think his medication isnt...

Today some great people hosted events in order to raise money for
Today some great people hosted events in order to raise money for levi! We would like to say a massive thank you to Bianca Heslop and Shannon boyce ...