1 in 10 people (in America - but it still shows how common it is) have hypermobility but somehow this has missed medical attention I know I post this stuff a lot but I do it in the hope that someone who is struggling or know someone who is struggling with these symptoms and cant find answers gets the help they need. I battled through this for 20 years before a doctor finally looked at the bigger picture instead of treating individual symptoms. There is currently no cure but symptoms can be eased with physiotherapy (only if they know about EDS otherwise they will most likely just injure you sadly) Occupational therapy for things like a perching stool for cooking or a shower seat that sort of thing. Then there is the dreaded pain meds. It will take a while to find what is right for you and people with EDS tend to have an extremely high tolerance to medication so the dosages will be sky high. This also applies in the dentist, we tend to need more injections than the usual patient and need regular breaks as our jaws get very sore and can dislocate. I am very passionate about raising awareness for this invisible illness as it is something I struggle with every single day but if I can help other people who may have this then at least some good can come of it
Posted on: Sun, 24 Aug 2014 11:35:16 +0000
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