111 days, 15 weeks, 2664 hours, 159,840 minutes, 9,590,400 seconds of thankfulness! Thanksgiving Day marks 111 days in the NICU. Coy is 3 months 19 days old. Not counting the 3 days Leah was fighting to stay pregnant in antepartum. Last week his original due date came and went. This was the original day we were told to look forward to in terms of him getting to come home. Well we knew early on that was a long shot. So we thought maybe Christmas, well that was crushed today in our care conference we had with the Dr.s. But we definitely believe in miracles and nothing is impossible for God. We all want Coy to come home in the best possible shape. And the doctors are saying the things they would like to see and keeping him until he reaches these goals will benefit him long term. The condition we think Coy will come home in are that he will have his trach, with some support via cpap/bi-pap or oxygen. We are now seeing the effect of his prematurity on his lungs (Chronic Lung Disease). Coys has a higher respiratory rate than a normal baby his age, which would be a full-term newborn. its not horribly high but its high enough for the Dr.s to worry about him burning too many calories. If he burns too many calories he wont gain weight as quickly which means he cant get stronger for him to overcome this lung issue. Its a huge catch 22! So this is why he needs support still. To be able to fill his lungs enough for him to have them inflated for his next breath so he doesnt have to over work himself with quicker breaths to keep up. He can start taking bigger breaths slower which will allow him to grow normally in the long term. Dont get me wrong Coy can breath without support through the trach. But if he was to do that over a week we would see regression. His growing curve is normal also, we just want to continue this path without any major set backs. Coy needs to be 10 pounds for the home vents/cpap to be most accurate and efficient. And we have to go through 4-6 weeks of training on the Trach Care Unit before we can take him home. We thank God everyday for Coys life, his spirit, his perseverance. Everyone that comes in contact with him is charmed by his cuteness and then stunned by his strength. We are thankful for our family, our friends, our church. All the nurses, doctors, surgeons, RTs, OTs. The Ronald McDonald House and the people we have met here. Im thankful to my work Armor Metal Group for letting me keep my job. But most of all we are thankful to God. He has brought us through the fire. He kept telling us to hold on just a little longer, here is my hand because we are going through the fire again! But each time we rose from the ashes better than before. each time proving he is there! Our plans, are not Gods, Im so glad they are not. We only see today, God sees us joyful and happy tomorrow. Happy Thanksgiving everyone!
Posted on: Thu, 28 Nov 2013 08:12:46 +0000
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