2:40am Im awaken out of my sleep to the most severe pain Ive experienced in years. My neck, jawline, arms, and entire back down through my hips throbs in excruciating pain. I wait to take pain medication to see if it will pass because I have work in a few hours & its hard to work with them in my system, especially this close to sunrise. It doesnt. I take two Norco pain relievers, along with phenergan, for nausea and pray the 30 minutes it takes to get into my system passes swiftly while I pace the floors moaning in pain. I hope the neighbors dont hear me and think Im engaging in something else. I wonder if Pa can hear me. This is around the time for his usual his bathroom visit. I wonder if hed already gone and is deeply asleep. Damn. Why Monday? Why couldnt this have happened this past weekend? I have til Friday to receive my blood transfusion. But the last times I received it, it only worsened my crisis because my body fought the new blood & produced more sickled cells. I look at the clock hoping at least 15 minutes have passed as I pace the house. Its only been five. I deeply massage the parts of my body I can reach as I pace the floor taking in as many deep breathes as possible to promote enough oxygen to move my cells from the places their stuck. I drink water & pack my overnight bag to waste time. 10 min. I draw bath water hoping it will relieve my misery & not worsen it. 15 min have passed. I bathe carefully trying not to aggravate the pain in my joints as I groan & try to take in oxygen. I finish my bath and look at the clock. Thank God 30 minutes have arrived. I dry off & get into bed steadily taking in deep breaths while I concentrate on feeling of the effects of the narcotics & weigh out the difference in cost of going to the ER or receiving the transfusion on Friday. Ive already missed so many days out of work & my medical debt is steady climbing. Around 4am, I text my boss to let her know I will not be coming in & possibly heading to the ER. In time the pain has subsided enough for me to lie still & doze off. I decide to manage it at home. 5am, Im awaken again to throbbing pain. I take another pain reliever & doze off. 7:44am, I wake up and am ok. I decide to push forward and get prepared for a day of work. So, if by any chance you see me today, note that my quietness, grouchiness, and tiredness is for a reason other than having an attitude or being antisocial. Being that its SCD awareness month, I decided to open up and give you just a little look on the inside of a sickle cell patient managing day to day life with this disease. Claiming a great day in Jesus name & hoping that you, reading this, will stand in agreement with me. TTYL, FB. Be blessed.
Posted on: Mon, 15 Sep 2014 13:39:07 +0000
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