A 48 hour + blood draw... (Dads post) Melissa and I belong to a Facebook group for ATRT families. There was a post yesterday from another family that really evoked emotions from me, I have never posted or commented on that group page but this time I wanted to. Melissa is the one that communicates on that site, by the way it is very helpful group that helps us navigate treatment and emotional issues. First I am not suggesting that anyone following us has every thought this, so this post is most likely for people that will never see it, and most following have most likely experienced similar feelings. Let me start by summarizing the post that relates to our trip this time. This family posted about their frustration brought on by others reactions to there blog. Like us they share a bunch of pictures and stories of the good times. In return they have received several negative comment about how the always look like they are on a vacation in the pictures and comments they post. This really touched home on how I post. This was an extremely rough trip for me this time. This biweekly visit to St. Jude started out on the wrong foot. We had a delay for 3 hours before we left Wichita, 2 hours of that being stuck in the plane. I am usually pretty strong , or at least am able to bottle my emotions up for the most part. Not this day, I was a wreck and Adele was having a rough time with the delay too. Between being a regular two year old stuck on a plane, I was frantically trying to figure out how we were going to make it to St. Judes and then make it back home. I had several generous people offer to help us out and I am thankful for that. We finally took off and had another 30 minute delay circling the skies before we could land in Dallas. By now our other flight was cancelled and so was most of the flights that evening. Luckily I have a brother that lives in Dallas and we were able to stay the night with them and have a few hours of quality time with them. Melissa spoke at an even at our church the other day on the topic of how faith heals. Does it ever, I am not sure I would have be able to emotionally make it without this detour and visit with my family in Dallas. Also when we landed in Dallas Adele told me thank you, I asked her for what. Her reply was for the airplane ride, it was fun. She was not happy the whole flight so this surprised me but brought my emotions back into check. Adele was not happy to leave family in Dallas and after an early arrival to the Dallas airport for our flight, it was delayed for another 4 hours. So to make this story shorter, we finally made it to St. Judes. After a quick doctor visit at 5 pm, we were both wiped out and are a quick dinner, and went to bed since we missed our flight back to Wichita. We were able to get on a flight this morning and are back as one family once again. So back to my original point on this point, I too try to focus on the good, and make the best out of our situations. I have made it a focus to enjoy life and family. I thought of the last post I made with all the goofy, playing, and cute pictures and comments that I posted. I thought wow if you didnt know better it would appear that we went on a bunch of vacations. I would gladly trade away all of these vacations for the way we had life before all these vacations. We are getting close to that stressful date of another MRI. Thank you for all the support, you lift us up when we need it.
Posted on: Sat, 04 Oct 2014 22:18:05 +0000
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