A post from Mommy: Today Dr. Lyons and Patricia decided to increase my Topamax to the max dose. We are trying to eliminate as least some of the seizure activity. Now that Savanna is older she is able to express how she is feeling, which is giving us a lot more information and better ideas on how to treat her Epilepsy. Here is our game plan as of now... Increase Topamax. Next Friday (a week from today) she is going to have another 72 hour EEG put on that will be removed on the following Monday. Once we get the results of the EEG we will make decisions on how to treat her. There are different things the EEG will show us and they are: 1) Generalized Epilepsy (which she was previously diagnosed with) which means the seizures are coming from more than one part of her brain. 2) Localized, which comes from only 1 part of the brain. 3) Nothing, which is NOT really what we want, but is possible because 9 out of 10 EEGs done on Epileptics will come back showing nothing. Once we know what the EEG we will decide what is best. If the EEG comes back clear then she will be admitted for an undetermined amount of time. They say that because they will do the admission, hook up another EEG with video monitoring this time and take her off the seizure meds. She will remain until she has a seizure. No, we dont want to have to go this far, but right now we need answers. At least if we end up doing it that way her seizures will be videoed, recorded and we will be able to change the medication according to what type of seizures she is having. Some of the treatments we were told to consider are: Ketogenic diet- The ketogenic diet is a special high-fat, low-carbohydrate diet that helps to control seizures in some people with epilepsy. It is prescribed by a physician and carefully monitored by a dietitian. It is stricter than the modified Atkins diet, requiring careful measurements of calories, fluids, and proteins. VNS or vagus nerve stimulation is a device is surgically implanted under the skin on your chest. A wire is threaded under your skin connecting the device to the left vagus nerve. When activated, the device sends electrical signals along the vagus nerve to your brainstem, which then sends signals to certain areas in your brain. Lots to think about and consider, but we will keep everyone updated.
Posted on: Sat, 10 Jan 2015 03:28:44 +0000
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