AFTERNOON THOUGHTS: I was doing research again this morning. And something that truly broke my heart was a story I came across about those with crohns disease who committed suicide because they cant take the pain anymore. Reading thru all those stories of mothers, fathers, wives, grandparents, and siblings of these folks who left this world that way, not only tore me to pieces, but it also made me go investigate some other links I found in them. And it angered me to no end that it isnt out there about the direct link between crohns disease sufferers and the suicide rate. It angers me that upon diagnosis, these patients should indeed be offered counseling and in my opinion, group therapy as well so they can connect with others like them, but it isnt in so many hospitals and/or doctors offices. It should be written as a prescription LONG BEFORE any other script is written. Did you know that 1 out of 20 take their life? That number shook my soul when I read it. And why is that? Because theres no cure. They get sick of the run around. The medicines that fail. The surgeries over and over. The alienation of not having a healthy body to where they cant function doing normal activities so they are, in truth, left out of many things because they cant do them, which in turn, they alienate themselves because others also do it to them as well. Especially teens. Most all cannot hold jobs because of the pain, the vomiting, the tiredness, and the constant battle going back and forth to the doctors or being hospitalized. Almost all battle severe depression because the pain is too great and to them, theres no end in sight so why not take themselves out is how these folks viewed it. Many dont hold relationships long, if at all, because the medical, emotional, and financial burden of it all is too much for some. Many are, in fact, alone in their fight. That made me cry really hard. Last year, I was on a crohns forum and some of yall were on there with me when the mom of a 17 year old girl came home and found her daughter dead. She had committed suicide. I didnt understand then. We were, in fact, new to all this back then. And whether misdiagnosis or correct diagnosis were facing now, doesnt matter. I read thru all this today and not only did I get sick inside over it all, but I also found a newer pride for my son because he has stuck in here this long and continues to fight. On a very positive side of this, I am blessed to know that the childrens hospital in Ohio first and foremost focuses on the mental health of these kids. They do, in fact, after reading everything their hospital has to offer and speaking to them via phone call, believes in the philosophy of taking care of the whole family. As one. As incurable diseases affect the entire family unit and they focus on that as well. This made me very relieved to know. Because until todays research, I had no idea the seriousness of the suicide rate in this. And what I have been saying all along to them about these pain killers held true in every article I read. These patients, like with many others diseases out here, become addicted to these pain killers. And when a doctor suspects this, they pull them off. Even though they pushed them onto them. They take em away too. And even that is a catch 22 and dangerous because not only do we get left with children addicted because of it which in itself addiction can be deadly, but the patient no longer gets to end their pain temporarily either unless they go to the e.r. and get i.v. pain meds. So what does that person do? Camp out at the hospital daily? Or perhaps the doctors ignore the addiction part of this and just leave them on it until they realize they had them on em so long, they dont even work anymore for the pain, but rather its just a high and the patient accepts the high because at least its something to take their mind off the pain for a moment. All of this greatly saddened me to no end. But Im positive were going to Ohio. I have faith in something up there. What I do not know. But I know its there. I cant explain it. But I do know it. I dont ever want to find my child in my home on the floor not breathing. I dont ever want my child to feel as though suicide is the only answer in a very cruel country that has a very greedy FDA and an even more greedier government in it that has not only caused this disease, but many out here, and could cure so many people in this country if only their pockets didnt come before their hearts. I dont ever want Adam to feel alone. I always want Adam to be able to talk about how he is feeling in any part of this and I know that changes nothing physically about what he has, but it does let him know he isnt alone in this. So this is why I stay by his side. Its why I dont ever leave him. I cannot. I will not. I could not. Its why Team Adam was originally created. So he never has to be alone or feel alone because nobody should ever have to face this alone. Education is key in everything. So many ask why I spend hours upon hours researching anything and everything. To that they get Im not just leaving my sons life in a doctors hand. I am his mother. Therefore, I will find out everything I can and when you are armed with knowledge, there is no more wool they can pull over your eyes. Most doctors love stupid people. Big pharma loves stupid people. Our government loves stupid people even more. I refuse to give them that. I challenge them because we should hold anyone and everyone who takes an oath in this country responsible to it and see to it they are living up to every single word they promised. Before all the money, before all the politics, before all the numbers on charts, there were people. And people is what it needs to go back to.You can sit on the side lines and just hope. Or you can stand up and fight back. I choose to fight because my son chooses to fight everyday. And Im grateful yall choose to fight with us
Posted on: Wed, 24 Sep 2014 16:50:40 +0000
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