Afternoon to the group. I am in Australia and have found out - TopicsExpress



          

Afternoon to the group. I am in Australia and have found out yesterday that my 7 week old Grandson has been diagnosed with Kleefstra.My daughter attended at Pediatric appointment as he was also born with a cleft lip and palette, 2 holes in his heart and 1 kidney, the doctor checked his file for results from the genetic tests and informed my daughter of this outcome. They printed out information and sent her on her way... So I have researched all day today and joined groups seeking information as to care plans and am trying to find out if there are any other children with Kleefstra in Australia? My daughter lives in Darwin Northern Territory and is feeling shell shocked at the moment and doesnt help that she is also a single parent with 3 other children. Hoping to connect with other families...
Posted on: Thu, 13 Nov 2014 04:28:31 +0000

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