Andy had a follow-up appointment with his Neurologist today. We really like her and know we are in great hands. Many have asked how Andy is doing and what symptoms he is experiencing at this time. Andy is doing well. We continue to keep our calendar full in an effort to stay busy. He is enjoying all of his time spent with family and friends. As for ALS symptoms, he experiences never ending muscle twitching which can lead to painful muscle cramps. Andy has muscle weakness in his cheeks, tongue, hands and back. The muscle weakness in his tongue has led to difficulties chewing food and speaking. He also experiences bouts of breathlessness. This is a result of the weakening of muscles that support breathing. Andy is going to start taking the one and only medication for ALS, Rilutek. This medication MAY prolong life by as much as 3 months. It does not alleviate ALS symptoms but may slow the progression of the disease slightly. Andy is a fighter. He said this disease may do a lot of things to me, but it will never defeat me. We have set up a Giveforward site to help us raise money for a medical fund. All money raised on this site will go toward covering the exorbitant out of pocket medical expenses associated with ALS. If you are able to donate and/or share our site with others, we would be grateful for the support. gfwd.at/1jWduK6
Posted on: Mon, 04 Aug 2014 18:34:13 +0000
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