As Ive mentioned before my son and I have a condition called NF1 - TopicsExpress

As Ive mentioned before my son and I have a condition called NF1 which you can read more about below. For me its just a simple blood pressure test every year, for my son its regular checks on hearing, sight and more. We are both absolutely fine, but the disease can vary greatly and takes no prisoners in some cases. Im trying to raise some awareness of Neurofibromatosis and funds to help find a cure. In the scheme of things I know £5000 isnt a lot, but it WILL help. Please read the info about it on the link and if you can put a penny in the pot. Thanks Si gofundme/Neurofibromatosis

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As of Today 16/09/14 we have achieved our fundraising Target,