Boy - can I relate to this one?!! Every day and many nights - this is me, lately. It is NOT fun. My health and my ability to do and go is literally moment to moment. Sometimes, I have good days/nights, and I can get up, shower, and mingle with the world, but other times, all I want is my bed and my TV. So many people DONT understand what having a chronic or invisible illness feels like, but let me be the FIRST to say - honestly and straightup - I wouldnt wish this kind of pain on even my worst enemy. I have had numerous doctors, (who are SUPPOSED to be - professionals, in the medical world, tell me to my face, with a straight face - and I quote I have nothing NOTHING wrong with me!!. Uhhhmmm...hello - knucklehead - READ THE FOLLOWING: 1. even a simple HUG can sometimes hurt like Hell. 2. If I wasnt always wanting to just sleep all the time, and if I didnt even wanna take a shower, simply because I didnt have the energy, to get up off the couch, walk to the bathroom, and use that energy, to take said shower, after which I would have to rest, b/c my body would be worn out, and hot - which isnt comfortable, either, I might add. And, 3 - {{and this is my personal favorite, because I am going through it, just now. I have gone through it all before, (with the biologic meds: I took Enbrel, then Simponi, which made the horrible psoriasis come out in my scalp, then I took Humira. LISTEN TO ME WHEN I SAY, THAT I GAVE EVERY ONE OF THOSE MEDS AN HONEST EFFORT. Even though they were PHYSICAL shots to my stomach, and if youre a needle phobic WUSS like me, then you can probably imagine what that was like. Thank God for my mother - she gave me every one. I have also taken many oral meds, too. But, my body rejects any medication I get to combat the pain of the Fibromyalgia. It always makes me gain weight, {{I am at 170 right now, and to the friends and family who have seen me, lately, when you read that, youll be like, WHAT??!!, but, its unfortunately TRUE. Its all belly}}. So many of these PRESCRIPTION meds make me death-ly, and I mean, death-ly ill}}. Long story short - If I wasnt hurting so badly, that I just wanna stand up and scream...and possibly shatter glass while Im doing it - I wouldnt be in here asking for your help, doc!!! So many times, I honestly feel like I am standing in a crowd of millions, practically BEG-GING for relief, and NO ONE can hear me. Judge NOT lest you yourself be judged first AND also. Ask not what the person in pain can do for you, ask what YOU can do for that person in pain. This post brought it home for me. I have been suffering from Fibromyalgia since I was just 16 and I will be 37 in November. That is 21 years, FB family. Its time to shine a better and brighter light on this horrible disease. MS, Lupus, and so many others, also deserve attention as well. Thank you. :D
Posted on: Mon, 30 Jun 2014 08:17:41 +0000
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