Clinical trials and natural history studies will be very important in the process of discovering a cure and treatment for Limb Girdle Muscular Dystrophy (LGMD). Do you have a genetically confirmed LGMD diagnosis? If so, you may be eligible to participate in a natural history clinical study. The purpose of this study is to understand more about limb-girdle muscular dystrophy. Therefore, the investigators would like to track the following information collected once a year from patients with GENETICALLY CONFIRMED LGMD: quality of life questionnaires, muscle strength, motor function, routine examination, assessment of patient (or parent) understanding of LGMD, and serum (blood) for growth factors, cytokines, and biomarkers (all parts of your blood). By tracking this information, we hope to be able to understand more about the diagnosis, progression and natural history of this disorder. THIS STUDY IS CURRENTLY RECRUITING PARTICIPANTS. For more details regarding eligibility, the study, and contact information -- please visit: clinicaltrials.gov/ct2/show/NCT01783509?term=lgmd&recr=Open&rank=1
Posted on: Sun, 09 Nov 2014 15:20:57 +0000
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