DYNO DAY For all you speed freaks MCLAREN AUTO Tongaat Will be hosting a fund raising DYNO day on Saturday 30/08/2014 11AM TILL LATE All proceeds going for an operation for baby Brooklyn Harper Rex Hi Guys We came across the story of Brooklyn Harper Rex a 17month old baby girl that has a very rare blood condition , that if she does not get the proper treatment could turn fatal. We would like to raise some funds with the help of family and friends to help aid Brooklyn in her fight against her disease as well as to have a better quality of life. As most of you who have kids would know that at her age there are certain things she should be doing, but unfortunately this is not possible as she has been in and out of hospital as well as on drips. Below is an article from IOL Daily as well as below that is a blog with information setup by her dad that gives followers, fundraisers as well as supporters updates and milestones on her journey to a speedy recovery. Watching a beloved child succumb to a rare, life-threatening disease is heartbreaking and Darryn and Sam Rex of Glenwood, Durban, are doing all they can to save their daughter Brooklyn, 17 months. A healthy baby until nine months ago, Brooklyn, has been diagnosed with Haemophagocytic Lymphohistiocytosis (HLH), a rare blood disorder, and will possibly need treatment overseas to save her life. Estimates of the cost are in the millions, so friends and family have embarked on a massive fund-raising drive, including a benefit show at the Barnyard Theatre, uMhlanga Ridge, on Monday. Brooklyn was born six weeks prematurely, in March last year, weighing 2.1kg. She was a fighter, say her parents, and two weeks later, they took her home. “She went from strength to strength and there were no indications of any disease or problems that lay ahead,” says Samantha, 30. At the age of about 8 months, she started picking up illnesses easily. Sam and Darryn Rex enjoy Brooklyns first birthday party earlier this year. Picture: Supplied . She had Rotavirus three times, despite having been vaccinated against it. Just after Christmas, she was hospitalised with bronchiolitis, and again in February and March. “Towards the end of March, Brooklyn started with a persistent fever, vomiting and not wanting to eat or drink,” says Darryn, 37. “She had a rash and was admitted to hospital for tests. Before the diagnosis, she was treated for Kawasaki Disease, and doctors also suspected lupus, lymphoma, tumours, leukaemia and other dread diseases.” Brooklyn was finally diagnosed with HLH, a potentially fatal condition in which certain white blood cells build up in organs including the skin, spleen, and liver, and destroy other blood cells. The incidence is one in 1.2 million children, though the figure could be as high as 1 in 500 000 because many go undiagnosed. “We felt defeated by the diagnosis,” says Darryn. “It was an emotional roller-coaster and every other day we had a new mountain to climb.” There are many variations of HLH and doctors are trying to establish which one Brooklyn has. Treatment is tailored to the child, based on the type of HLH. “We have been informed that with her underlying immune problems, she will probably need treatment overseas,” says Darryn. “Quotes from overseas hospitals have ranged between R7.5-million and R19-million for treatment, including a bone marrow transplant, which our medical aid plan will not cover.” At the moment, the family is in Cape Town, as doctors do tests and consider treatment options. Brooklyn is in ICU at the Vincent Pallotti Hospital as she has a bacterial infection. A Facebook page, Hope for Brooklyn, has had more than 2 000 “likes” and several fund-raising events, some in other countries, have been planned. The band Loadshedder and Live – the Venue are organising an event with other bands in September. The Rex family say they will not give up on their quest for recovery for their child. Any money not used for Brooklyn will be used for children in similiar situations. “To any parents who find themselves in a similar situation, dealing with something of this rarity, don’t ever stop fighting for your child. Trust your instinct. You know your child better than anyone,” says Darryn. For update reports on her progress you can visity the following websites or copy the links into your browser. youcaring/medical-fundraiser/hope-for-brooklyn/205920 https://facebook/HopeforBrooklynRex In addition to this we would like to welcome everyone who would like to participate in helping raise funds for her cause as well as medical expenses. If you work for a company, own a company or want to contribute you are more than welcome to as this helps with Social Corporate Responsibility, also if you could do an in-house office donation collection this would be very much welcome as every bit counts. What we propose is that we have a 3 stage event. Where all proceeds will go to Brooklyns cause. 1. Dyno Day 2. Meet and Greet 3.Breakfast / Brunch Run with a show and shine My company will be providing prizes and trophies for this to aid in raising funds, those who would like to sponsor a prize are more than welcome to do so. Venues are to be announced as we are in negotiations with various companies. Please add your name to the list below if you would like to donate or would be attending the events or how much you would like to pledge or you can pm me, for those that will be donating please put a (D) next to your name. At the end of all the events all monies will be collected and be handed over to the family at the final event which hopefully can be the Breakfast Run and those who have dontated can hopefully meet little Brooklyn in person , this will be finalised or arranged once our dates are set and there is no health risk posed to her and her parents agree. If you require any further information please contact or pm or whatsapp me. Naeem 071 221 6005 / 0312628879 / 0614047713
Posted on: Thu, 28 Aug 2014 07:48:06 +0000
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