Day +17: Wow...what a difference a wave of prayer makes. He woke up this morning after 48 hrs of fatigue induced sleep; ..he said ahhh!!! I feel so much better!! I have energy!! When I came in early this morning I was smiling under my mask to see him not in bed, but sitting up in a chair, eating applesauce, surrounded by pretty nurses making him comfortable and laughing and talking together... so as I came in I said ...well now...its no wonder why you didnt call me in earlier! He looked 100% better first thing this morning...feeling completely different. He said Dad look! Look at my mouth! He opened his mouth, pulled down his lower lip that was normally split open with bleeding sores...but as he showed me...they were gone..as if they werent ever open... we both were so excited that we raised our arms in the air and started in on our heeeyyyyy!!!!! ..overlapping each others heeyyyy..heeyyyy..heeyyyy!!!! ....ok..so maybe only Bjj guys will know what thats all about ;) ...the nurses just laughed at us and even joined in heeyyyyyyyy!!!!!!!! Rounds were very positive; the lead doc very excited for Jer to look so good...the smiles on the other doctors faces showing thru their masks let me know everyone was impressed yet again. Good advice...go easy today...I know you want to go do everything... Eat everything... Just listen to your body...Dont test your gut...it can still be very sore internally... Give it a day...eat for pleasure if you want...just go easy... After rounds we got back with our shower routine; lay out the gear..tape up the aqua-guard, stage the towels and make his way into the rain room with his IV pump pole trailing behind. After two days without a shower he said he actually enjoyed this one; regardless of the tangle of lines and tubes and patches and caps...it was good to have clean water on his body and just feel better. New socks, skivvies, bottoms and blouse, re-secure the catheter line to his shirt w a makeshift flap of tape and a safeypin and he was ready to sit down for a bowl of cereal. ...then ease back and relax...enjoy the break in the action. Im sorry if this too much for some of you that may read this and may think its too much... But Jer wants to share how this is..the real deal..the good days and the bad days;...his words. ...and so if it can help someone in any way, then what hes going thru makes it worth enduring. So..pared to the last few days, todays nausea was manageable... Not to be taken lightly at all...but just to say he endured it very well. An early birthday present to himself; his blood work came back with good results. His WBC is coming up and his ANC has started to mature to a level that would allow him to enter the outpatient phase if it were today. should things continue this way, its very possible he can transfer sometime this week. With the transplant that happened on the 12th they call it his new birthday because his body changed internally, even eventually changing blood types. September 12th; so he gets to have the same birthday as his sister Lauren....the oldest and the youngest. Wrapping up the day; we got to hit the regular night time routine again. Recap the day over some milk n cookies...get an understanding of the process and where he is in it all from our super-nurse whos been doing this for 19 years. Feel good about the progress...laugh about the hard parts afterwards..and tell eachother how much we love eachother... As he says so well, I love loving you.. ...tomorrow is his real birthday! 20 years old... but tonight... tonight hes still my teenage son :) ..so Ill just soak it up and watch him rest.
Posted on: Mon, 29 Sep 2014 05:02:08 +0000
Trending Topics
Recently Viewed Topics
© 2015