Dr. Joanne Wolfe: Innovating Pediatric Palliative Care What is it? Why is it so Important for children with cancer! Her hypothesis, which she is testing now, is that each child needs a champion -- Dr. Wolfe believes that families need education about how to advocate for their child. She notes that an early study she did showed that families don’t just hold hope for a cure for their child, but also they hope their child doesn’t suffer. “We need to amplify that hope so clinical teams will respond sufficiently.” She says parents need to ask that there be a high focus on the child’s physical, emotional, and spiritual well-being because a child’s day-to-day life during cancer treatment has long-lasting effects. “I want kids to emerge from cancer as children with greater strength and not undue or preventable injuries as a result of treatment.” Dr. Wolfe currently sees a lack of knowledge as the greatest obstacle to improving palliative care for children, which is why she thinks research is so important to pushing the field forward. Those in her field, she says, “must continue to ask the right research questions.”
Posted on: Fri, 16 May 2014 14:33:42 +0000
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