During this journey with Molly, we have come across many parents - TopicsExpress

During this journey with Molly, we have come across many parents and children needing to know they are not alone. Since November 2013, I have been running a chronic pain support group for those living with Dysautonomia and RND/RSD/CRPS. This will continue on with the affiliations of Dysautonomia Divas and the Rare Disease United Foundation. Im excited to be working with these organizations and their leaders, Amanda Johnson Aikulola and Patricia Ferland Weltin! It is time our voices are heard! Our next meeting is scheduled for Saturday, April 26 at 11 a.m. This meeting is open to those suffering w/rare disease and their caregivers and families.

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