Evening all!!! Quick update tonight!! So were in our own room, which is so nice :-) a lot quieter and less chaotic!!! There was a lot of transferring wires and adjusting things to how theyre done in the floor which was a bit tough, just because every time E would fall asleep shed be awakened with another procedure or change!! Shes having a tough time falling asleep tonight too. Her potassium has gone up a bit, not quite in the normal range yet but getting there :-) Her phosphate is also lots so they have her an oral dose to help with that today. Were hoping the one dose will be enough to stabilize that. Her bilirubin is also up, which would explain the jaundiced eyes, but they anticipate thatll clear up quickly :-) she is trending the right way, so were happy with that :-) We had a wonderful visit from Chantal Ann and Drew tonight!!! Thanks so much for the visit and for the wonderful stuff for the girls!! So thoughtful!!! We also discovered Marnies Lounge here at the hospital tonight which was pretty awesome!! Pinball, air hockey, arts and crafts, computers... neat distractions :-) Thats all for tonight, Im going to try to get some sleep, but thank you again to everyone for your continued support!! Were still loving all the prayers and positive vibes :-) Much love to everyone!!! ~*XoX*~ Epic E and Family!!!!
Posted on: Thu, 31 Jul 2014 02:11:30 +0000
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