Everly has been good today :) they increased her feedings, kept - TopicsExpress



          

Everly has been good today :) they increased her feedings, kept her meds the same and will check her ammonia level tomorrow. So she is stable today with just a few seizures this morning. I post all the time about whats going on medically with Everly but there is much more to this sweet little angel already. So here is a few of the little things Ive loved learning about Everly Everly has this expression where she is just happy, almost smiling. It makes me so happy to see her kicking and happy 😊 Everly sleeps with her mouth open most of the time and her little tongue laps its so adorable! Everly has this little squeal cry when shes frustrated, the sweetest sound ever! She gets the hiccups multiple times a day almost any time the nurses mess with her or start her feeding, she sounds like a little puppy lol She likes to lay on her right side the most. She loves for you to brush her hair, it will put her right to sleep 😊 Everly loves for me to kiss her neck she just snuggles up to me and sighs. She is a pro at sucking on her pacifier! Watching her is so funny and sweet at the same time! She has such a grip! Her little knuckles turn white sometimes when she latches on to my finger. She also pulls many of her tubes out of her nose and mouth! She is so brave! She goes through so many pokes, IVs, tubes, and test but she braves through it all and hardly fusses at all. My little princess and warrior. My heart and my world. I cant begin to tell you how much I love this child already. I am so thankful God thought me brave enough to trust me with her. Not only her but her brothers too. I am beyond blessed.
Posted on: Tue, 06 Jan 2015 01:33:14 +0000

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