Following this offer: https://facebook/photo.php?fbid=10152305935429824&set=gm.265303176981174&type=1&theater We have our first TroubleShoot #1 Heres the thread so far and she is working on her history! PM: Conversation started today 7:40am Hope AnnaPrayer I would LOVE to troubleshoot with you! My son is a pretty complex case, with so many variables. We were a Klinghardt patient for a minute & currently seeing Dr U and doing CD protocol. I would love to sit down & give you a list of what we are doing, with a list of what we know (ie. Lyme, HPU/KPU, Ketotic Hypoglycemic, etc). It would take me a few days to get all this together, however. I would be happy to let you share the info we gather, in hopes that our tough case may help someone else. 7:41am Dana Gorman Start writing 7:42am Hope AnnaPrayer You are amazing!! I will start writing it up this evening! Thank you! 7:42am Dana Gorman The more complex the case the more oftentimes there are things in there that are just overlooked with doctors who dont have time in an hour to dig for them...lets go digging in hopes it will add to our list of things for kids to look for! 7:43am Hope AnnaPrayer I couldnt agree more!! 7:43am Dana Gorman I dont know that I will find anything, but when we post it on the group (if you are afraid otherwise of backlash) the collective will hit it out of the park and then we will know all this new stuff! 7:44am Hope AnnaPrayer What an amazing opportunity for my little guy! We have traveled the country since he was 1 yo. He still has a long, long way to go (hes 5 now) 7:45am Dana Gorman Try to not leave anything out even your pregnancy and relationship history 7:47am Hope AnnaPrayer Ok. I have a lot compiled already, just from all the new patient packets to all the docs weve seen. Krigsman, Gupta, Rossignol, Bradstreet, Klinghardt, Usman...weve been around! LOL! So I will be able to pull history info from there as well. I also have a copy of every lab weve ever done (which has been a lot) 7:48am Dana Gorman Ok...now put ALL of that aside and write your STORY 7:48am Hope AnnaPrayer Will do 7:48am Dana Gorman Dont look at ANY of it but instead allow your memory to be your filter for this first draft of trouble-shooting 7:54am Hope AnnaPrayer ok, I can do that 8:04am Dana Gorman and allow it to take effect on you as you get to the painful parts...have a good cry 8:06am Hope AnnaPrayer You must already know me. HA! There are still pictures & video from the early years that I just cant bring myself to watch, Just too painful. I couldnt possibly go thru it all without some good crying 8:08am Dana Gorman so do a rough draft without all that stuff right now so we can look for the glaring stuff 8:14am Hope AnnaPrayer Crying is good. I can give you a great summary, with all the important details. Im sure I will forget some things & have to fill in some gaps as we go. There so much information! I am really excited to have this opportunity! 8:16am Dana Gorman Well I hope I havent bitten off more than I can chew...are you afraid to do this openly in the forum? IF not then post it there for all of us to input. If you are...and i get that, can you get an alias so that as we move forward you can just answer peoples questions there??? but dont worry about that for now the initial stuff will be easy here 8:30am Hope AnnaPrayer When you hear the full story, I think you will be glad you are taking this on. I have followed you (& THRiiiVE) for a while, although I lost you for a little bit. I know you are up to the challenge. I am a little hesitant to let the forum know who we are, as many of the ASD moms in my local community are anti CD. Also, I have to worry about my ex knowing too much. But, that is what this alias, Hope AnnaPrayer is for. 8:34am Dana Gorman let me be more blunt...are you afraid to open up under this alias for fear of retribution from either SIDE of this current feud: (TACA or CD) if you share with THIS alias in THIS group ... if not then put all of this in the main feed... does that make sense? 8:37am Hope AnnaPrayer Oh, no, I am fine with sharing under this alias. 8:37am Dana Gorman then i am going to cut and paste what we have so far! and you keep writing your history 8:38am Hope AnnaPrayer Ok 8:38am Dana Gorman is that okay to start a thread with what we have in this pm so far and then you can add to that??? 8:39am Hope AnnaPrayer Yes 8:39am Dana Gorman coolio...may the games begin...not intending to belittle this at all but while we are trying to save our children and ourselves we might as well try to make it fun! 8:40am Hope AnnaPrayer Yay!! Super excited to share & get feedback! Thank you for coming up with this idea & the forum to make it happen!
Posted on: Sat, 29 Mar 2014 15:52:46 +0000
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