For those that reside in England this should help you. One lesson I would like to share with you, that was kindly taught to me is the lesson to take responsibility for your own health. We are service users, our taxs are spent on the wages of public servants, also known as professionals. We have certain rights and we need to be aware of these rights. If you feel that you or your children have been failed badly and that others may also suffer, then you have a few choices, you can say nothing as many of us do most of the time. Or you can complain. I have had masses of help and support in learning how to complain, I was pretty useless for a long time, I was very lucky to have some guidance, I am sure I still have a lot to learn. The lessons I have learned are as follows. 1) There are some decent people out there who will apologise first time and my personal opinion is that these people will learn and they are genuine in their apology. 2) You will often be fobbed off. 3) Ask specific questions and keep a copy of your questions. They will try to answer a different question to the one you asked to avoid admitting errors. If they avoid answering your question this is something the Ombudsman can investigate. There are various ombudsman, for example there is one for local government. 4) They will offer you a meeting, sometimes a meeting can be helpful other times it may not, you should go. If you can take someone with you or a recording device if you suffer from brain fog. As a private individual I understand that you can record a meeting, transcribe and share. You should check yourself with the information commission ombudsman ICO. Please check the equality act of 2010, you should be able to use a disability aid as a reasonable adjustment. If you have issues with brain fog then a recording device can be a very helpful disability aid. 5) Subject Access Request, (SAR) again please check with the ICO yourself. You have to pay a small fee and often have to supply ID or fill out forms. I have yet to have one that was back in the timeframe it should be back, rather than creating more paperwork a phone call query to ask why it was taking so long can get quick results. Many organisations do not give you everything they should. You can complain to the ICO if this happens. 6) Check that complaint responses match each other, for example one agency may say one thing happened and another agency may say it didnt happen. 7) Once you have answers and apologies you can be left still feeling wounded, I realised that nothing can make it better. You just have to learn to live with it, this is a tough lesson. ehlers-danlos.org/ hypermobility.org/hmsa-news/ ico.org.uk/ ombudsman.org.uk/ cqc.org.uk/ legislation.gov.uk/ukpga/2010/15/contents england.nhs.uk/contact-us/complaint/
Posted on: Sun, 02 Feb 2014 03:38:43 +0000
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