Getting ready to lay down and try to get some sleep, but at least going to get some much needed rest. I have to be up no later than 12:30 today and have to leave my house no later than 1:00pm so I can go pick up my beautiful wife, and then her, myself, and our 10 month old are going to go visit Susan during the visitation hours. As for an update, for now until later, She is still not doing good. I got to talk to her last night, actually first time since our family meeting Wednesday afternoon, and I could tell from her voice that she is not happy at all, and she wants out. But I can not get thru to her at all that she needs/has to quit fighting, and just do what she is supposed to, which is cooperate with them, eat her food, follow the rules, and participate in all activities, whether its gym time, (even if it is just using the exercise equipment by herself, walking around, writing in her journal, or doing something with a small group), art group, something group, as well as having to participate in group therapy as well...and that if she doesnt she either isnt going to be released or when she is finally released that they have the choice of instead of letting her come home they can choose to put her in a long term residential treatment facility instead. I really hope that I can get to her today, or that her Mama Chu can get thru to her...I love her so much and just want her to get better. At least tho, if what she says is true, she is talking to her nurse and to the doctor...but I have to wait to hear back to get confirmation. Which on that note, Im fully upset with lack of communication with the professionals from up there. I called up there and left a message with the charge nurse Thursday evening with the concerns of not only mine but of the psychologist from the school that evaluated her, her mental advocacy worker, her special ed cordinator and behavioral specialist both from school, her therapist, my fiance, and her Mama Chu, as well as many others (way too many more to list) that I have not heard from the doctor not once, nor have I gotten any calls from any nurses or anyone else asking for permission to change or adjust any of my daughters meds, so therefore they have not done so...made any changes to them I mean. When I ask for updates so far other than maybe one or two new bits here and there, I get the same, she isnt participating or cooperating, but give her a little time, or a day or two, she just needs to settle in and she will open up, she will get there...when I talk to the charge nurse Thursday and I get told that she was Wednesday night and Thursday morning starting to at this point a week in now having problems with other patients, having altercations with them (which I was not notified about, yet at the family meeting I was told that if there was any altercations it was policy that I had to be notified...so really???!!! where is the communication at all in this place between them and me) and still having verbal altercations with the staff, including cursing them out. Well its been a week and 2 days as of today, and as of last night she was starting to make threats again....that to me means shes not getting better...in fact possibly getting worse. Depending on what happens at visitation today, I am possibly considering the option of having her switched to the other behavioral hospital that she has been in before, that I originally requested her be sent too...And where they constantly were in contact with me every day at all times....even though it is anywhere from 1 hour to 1 1/2 hour away from me depending on traffic and construction. Its worth the drive if it means that she is in a better place that is interested in actively getting my daughter better and working actively with myself and her professionals on the outside while doing so...so that when she is let out, her release has a higher chance of being successful like it was for close to the past 2 years until now....Im sorry for the long long post, but I guess I had way more on my mind than I thought, and guess I really needed to get it off/get it all out of my darn head and maybe can get some input from all of you, my wonderful friends/great support group that you all have been for me since this all has happened. I know I have said it now more than once, twice...and I have to say it again. Thank you, for all the support that all of you have offered me. I wont say that I couldnt have done it without you guys, but I have been able to stay strong, stable, and positive because of you guys which is so much better than being able to just handle the situation, especially after the added stress/news I got about my family member being ill this week. Well Ill end this post for now, and hope that everyone is doing well. Wish me luck on getting rest, and I will update again later this late afternoon or evening. Again thank you everyone for the support and help getting me thru all of these trying times.
Posted on: Sat, 22 Mar 2014 13:35:07 +0000
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