Good evening everyone. Im sitting watching a movie with the girls trying to get them to calm down after a rough day. Kailey and Ellah had a hard time with listening today. I really wish I had a trick on how to get them to listen. I know with school starting they are pushing the boundaries. They both hot in trouble today but they straightened up afterward. We ended having a good talk about feelings and how things with Aby is really hard. Kailey wants Aby healed and be able to walk and talk and chase her. It breaks your heart to hear your 6 year old say that. I always tell Kailey that God made Aby special for a reason. I think the increase in spasms is affecting Kailey to. She just say and watched her today. It broke my heart. Aby had a lot of spasms today and she also had a generalized seizure which is never fun to watch. I just want answers on why she has to continue to struggle with these nasty things. I got to see a dear friend today which helped break up my day and ran off some of the girls energy because they slept on the way home. I havent heard anything about the appointment in Michigan there waiting for records from mayo and medical associates. We want the soonest available. My daughter cant continue to live like this. I also got a sweet letter from my dear friend Krista that moved away but she loves Aby and I keep her up to date with emails. I miss her soo much and its hard being away. I cant wait till we get to see each other again. Well I better go get Abys food and medicine ready!!! Love you all have a wonderful night and thank you all for the your love and support Bedtka Family
Posted on: Sun, 24 Aug 2014 00:44:49 +0000
Trending Topics
Recently Viewed Topics
© 2015