Had a really good day today. Hanging out with Kevin helping him eat some chocolate pudding and milk. Talked to the director when I came in tonight. I was told that Kevin has about reached the amount that Medicaid will give them to give him therapy. Then they dont get paid any more for therapy, which I assume means that they will not work with him anymore. It is so wrong that they would send Kevin 300 miles away to Neuro Restorative and Indiana Medicaid will pay for him to be worked with there, but will not pay our own state workers to work with him. I realize that we really dont have a brain program here if you cant qualify for therapy and I dont think Kevin can qualify for therapy even with all he is doing. They really want you to be able to WORK at what they are trying to get you to do. I also dont want to see him regress because he stops getting any therapy. I dont blame this facility he is in. It isnt their fault, and they are working with him and helping them all that they can. It is just breaking my heart and I am in tears tonight thinking about my son having to go there. I want him to get better and if that is the only choice we have then we dont have a choice. But it will just kill me to be away from him. I have worked so hard the past two months to get myself to a place where I can be here with him. And just when I think that things are settling down and going to be fine, all this comes up. I think we are going to have RHI evaluate him again soon, pray they will give him a chance. Feeling heartbroken.
Posted on: Fri, 08 Nov 2013 00:23:07 +0000
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