Hello again just wondering if anyone has had a child with PRS and - TopicsExpress

Hello again just wondering if anyone has had a child with PRS and RSS apparently our surgeons have said there is no information anywhere and that he is the first child in the world to have both of these together there for they will not do jaw distraction surgery at this point (3 months old 2.8kg) because there is not enough information out there to tell about the possible outcomes the surgery could have?

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